Monday, November 06, 2006

A little about it..

Well I haven't posted about my appointment yet due to the fect I am still a little shocked and really haven't thought much about it. In a way I am trying not to make it a big deal and just go on.

I have lost what was left of my hearing in my right ear. I am very slowly (at this point) starting to loose it in my left as well. They are looking for some surigical and one non-surgical solutions on my right ear at this time to help my balance out a little bit. All of them involve destroying or removing the inner ear and the vesto-cochear nerve in the brain. Due to the large amount of hearing loss in my right ear they couldn't really get any results from the testing to comfirm what was going on. Although the left ear did test possitive for Meniere's disease. Also I have an occular disorder in which my eyes do not move in sync with each other.

What does all of this mean?

Well I have become pretty hard of hearing. Which many of you already know. I throughout time will probably become deaf. We have no idea how long it will take. Even after the sgurgeries and treatments on my right ear I may still have dizziness and vertigo spells along with my constant imbalance.

On the bright side..

When I do go deaf I may be a canidate to have a cochlear implant on my left side. It's not fatal, just a pain in the ass.

3 comments:

Merripan said...

My ex-husband had ear issues, too - a congenital birth defect which caused the bones in his ear to calcify together onto the cochlea and into one big chunk. He could hear high-pitched stuff, but not the lower end (opposite of "normal" hearing loss, apparently). Kaiser Permanente ended up breaking up all the bones and sanding down the cochlea, then replacing the bones with metal ones. He went from and 85% hearing loss to a 4% hearing loss in less then a week...

I know that it's different from what you're experiencing, but I wanted to let you know that there are new options coming up every day to fix hearing loss... On the other hand, you could get free ANSLam classes and have secret conversations with others. Bwa ha ha ha...

HUGS!

Darkwingedfae said...

Thank you sweety. I am glad you told me that. You prbably know alot more what kind of stuff I am facing than I do..lol.

Yeah we are stating ASL soon. I think I am gonna like it. I too have hearing loss where I con hear really high pitches and not low. Although I can't distingush speech very well.

Darkwingedfae said...

I have been on the "No-sodium" Diet now for since May. I take 70 mg (split of in two doses a day) of Diazide (pretty much that same thing). I am doing balance therapy and am on Meclizine, Phenergan, Valium, and Ativan. I am sorry to hear that you are dealing with it as well. I have been dealing with SSI for only a little over a year on this application. How long did it take for you to get your SSD?